Bad day

Hi all,

I apologise now for my little rant...

Today (well yesterday now, Thursday), I was supposed to go back into the Wellington Hospital for my 2nd infusion. As of 10pm last night, one of the secretaries still hadn't confirmed the time of the infusion. I woke up this morning on edge as both myself and my mother had taken the day off work and arranged to be back at home in order to pick my little brother up from school and take him to his after school activities etc.

At 11am there were still no timings and as I am currently staying with my parents, it takes 1.5 hours to get there. Soon after that, my immunologist called to say that he had arranged a bed for 3pm. As the infusions would take 6 hours, all of our plans were now completely out of kilter.

At 3am, we walked through the doors. The room was lovely, overlooking Lords again but this time with glass windows on three sides of the room. However, the nurse came in and said I had to go through the whole admissions process. 2 hours later, no infusion. My immunologist had to travel across London to sort it out and sign forms before they would start and I was getting increasingly

Once it was sorted we then went through the arduous process of trying to find a vein. 3 abandoned attempts later we found one and kicked off the IVIG, only for the line to fall out an hour later (it was precariously balancing in a tiny vein in my knuckle). I eventually walked through the front door at my parents house just before midnight.

What a day. I feel better now for sharing all of that. Hopefully I will wake up tomorrow to something better! I have a lovely weekend planned so keeping my chin up! :)