PAD

It's been a while. I'm currently at the Wellington Hospital in London where I am being treated with IV antibiotics for a nasty infection. I am also having an endoscopy to work out why my stomach isn't working properly. 

The immunologist has also decided that there is no point in waiting any longer and that I should start the IVIG infusions (Immunoglobulin). I'm a bit scared about this but everyone I've met has said that it is a big step forward and that it really does work. Fingers crossed. 

Below is a short poem for UKPIPS - the organisation that supports people with immune system disorders like mine:

"Why am I ill?"
I continuously said
As my mother used a wet flannel to dampen my aching head

"You'll get better soon"
was her repeated reply
as I lay there feeling like I was going to die

Fortunately, to my rescue came a renowned immunologist
who understood my pain, my tears
and why I had so many fears

Another bout of illness and to the hospital I was sent
The lack of veins and more needles added to my torment

But at least now I know the illness that is affecting me,
I can stand tall and proudly say, "I have CVID"

So now I look to the future
and IVIG is next
I can't wait to feel better and not like I've been hexed

I've met some great new friends
Through a group called UKPIPS
They give me strength for life's adventures
and keep me strong through the many blips.


Thanks to all of you who have been at the end of the phone (or online). It really does make a big difference knowing that you are all there!

Lots of love from a brighter and more hopeful me x